Dr. Sandeep S. Chhatwal - Your question have been answeredArticles

Your Questions Answered By Our Experts

image
Dr. Sandeep S. Chhatwal - Your question have been answered

Question. Can a person with celiac disease face issues with menstruation/menstrual cycle?

Answer: Coeliac disease can have an impact on the menstrual cycle in many ways. Firstly, a young girl who is coeliac may have a delay in onset of periods (menarche). Secondly, periods may be irregular with variable flow and patients may have a higher incidence of dysmenorrhoea (painful periods). Lastly, celiacs remain fertile for shorter duration as they may have early menopause.

 

Question: “My son (age 15 years) is having celiac (last 7 years) at starting stage while eating gluten by mistake his body reacts with severe headache or stomach ache but now reactions is stopped….so can I think celiac diseases is cured? Just to know the level of celiac which test has to be done? Every year we have to test celiac?”

Answer: Not having reactions does not mean celiac disease is cured. Once a celiac…. always a celiac. One should regularly test for antibodies ( ttG IgA ) to check for exposure to gluten. Keep in mind that a negative test does not mean exposure is not happening or that your child has started tolerating gluten. Celiac disease is an autoimmune disease and can affect the body in more than one way.

 

Question: My daughter is celiac and facing problem of constipation. She is taking medicine on daily basis for the last 4 years.

Answer: Constipation can be a symptom of coeliac disease. This happens when the gut in coeliacs absorbs more moisture than it should.
What you should also know is that gluten free diet has less fiber. Build your child’s diet around fresh fruits, vegetables, salads and nuts Include gluten-free whole grains like quinoa, buckwheat, amaranth, millet and brown rice. Ensure that your child is drinking enough liquids. Increasing fiber intake without increasing fluid intake can actually make the situation worse.
Exercise should be a regular part of the daily routine.
Hypothyroidism is a common disease which causes constipation and is seen in coeliacs. Get your child’s thyroid profile done.
If your child continues to experience constipation then one needs to rule out other conditions that can occur along side celiac disease and trigger constipation. For this you need to talk to your treating doctor.

 

Question: Why doesn’t the gluten come zero on testing when there is no gluten like in Kissan ketchup and Bikano. To be more precise, Do the products of Wheafree or homemade completely gluten free products which are completely devoid of gluten also show such readings on testing like 2, 3, 1.5….ppm its confusing.

Answer: For testing one should use the accurate weight of the test sample as mentioned on the kit. Using a higher or lower quantity may give a false positive or negative result. It also depends on the method one uses for testing whether it is Lateral flow devices( LFD’s) vs ELISA which are beyond scope of this discussion.
As a thumb rule remember that if the test done accurately shows gluten <20 ppm, the product is safe for consumption.

 

Question: Hello sir I have been celiac since 2011 and it’s been 11 years and I have been taking gluten free diet. Recently, I have undergone ultrasound which shows that my gallbladder wall is thickening around 10.3 mm and a little bit of fatty liver. Please suggest what I can do to get this resolved.

Answer: Liver enzymes may increase in coeliac disease. There may be other diseases associated with coeliac disease. To start with get an LFT, GGT and ttGIgA tested. Get a Fibroscan liver done if it is available in your city. This would help get a more clear picture.
Follow up gall bladder thickening with a serial ultrasound every 6 months.

 

Question: My son 18 diagnosed celiac 10 yrs back. His ttg remains around 15-16.He is too skinny with lean bones .
How to increase his muscle mass and make bones stronger .(we are vegetarians)We strictly follow GF diet.

Answer: What is the cut off level of ttG for your lab? If ttG is higher than upper limit of normal think on lines of contamination or hidden gluten in his diet. Get him screened for iron and vitamin deficiencies. Get his sugar and thyroid profile tested . You should also see your doctor to rule out any other illness which may be associated with coeliac disease.
If all above is okay, see a qualified dietician to plan his diet.

image

We have got experts to help you with your doubts and queries related to celiac/gluten intolerance. It’s time to have your questions answered!

Our Expert:

Dr. Sandeep S. Chhatwal

Dr Sandeep S Chhatwal
Senior Consultant Internal Medicine
Omni Clinics and Diagnostics
SCO 343-345 / 34 A
Chandigarh

Dr Sandeep S Chhatwal is a Senior Consultant Internal Medicine and Managing Director of Omni Clinics and Diagnostics. With over 25 years of experience, he has special interest in Allergies, Diabetes, Geriatrics and Adolescent health disorders. He is a member of various Medical forums and is actively engaged in community workshops, training and awareness programmes. Dr Chhatwal is the founder and Managing Trustee of NGO Veeranwali foundation. The NGO touches more than 3000 underprivileged children a month in fields of education and healthcare through its flagship project Nanhi Jaan.

Dr Chhatwal is also a Coeliac and that helps him relate better with his coeliacs under his care.

READ MORE
HPS Lamba (CEO, Wheafree) in conversation with Annika Dhariwal (Founder Gluten Free Jio)Articles

HPS Lamba (CEO, Wheafree) in conversation with Annika Dhariwal (Founder GlutenFreeJio)

image
HPS Lamba (CEO, Wheafree) in conversation with Annika Dhariwal (Founder Gluten Free Jio)

You are a celiac, when and how were you diagnosed?

I was diagnosed with Celiac disease when I was 8 years old. It was not an extremely straightforward experience. Initially, I fell sick with a fever and temperature every few months and was extremely weak and short for my age. I did not realize this at the time but it was because I was immunocompromised due to celiac disease. I never had the classic symptoms that usually affect the digestive system. I was constantly misdiagnosed in India with other diseases which the doctors had assumed based on how weak I was. I was finally diagnosed in the US when my pediatrician decided to run a TTG test. My TTG number was extremely high but to confirm that I had celiac disease I had a biopsy. Straight after the biopsy, it was confirmed I had celiac disease and I have been on a 100% gluten-free diet ever since.

You had been in India and UK (and many other countries) so what difference have you noted in relation to the availability of gluten free food in the market?

I was diagnosed 10 years ago and back then the availability of gluten free grocery items at stores in India was extremely limited. I usually carried most things back from the US and my mum made gluten free atta at home using a chakki. When I went to boarding school in the UK at 11 I realized how easily available gluten free items were in all supermarkets. Similar to the supermarket’s restaurants in India barely had knowledge of how to cater for someone with celiac whereas many restaurants in the UK had GF items clearly marked. Over the past 10 years, it has been exciting to see how the levels of awareness have increased and restaurants and supermarkets have adapted to this.

How did you come up with the idea of Glutenfreejio app and how is this serving the celiac community? Please share what this app is all about with our readers.

Whenever I visited other countries on holiday, I realized that most countries had an app that can easily help locate restaurants with gluten free menu’s. I realized that the Indian celiac community really needed something like this. Hence, I decided to create an app that can help locate gluten free restaurants near you once you put in your location. I felt that more features could be incorporated into the app so I decided to add a function where users can also locate grocery stores selling gluten free items near them. Further, the app also has all the resources that are available on the gluten free jio website. I hope this app helps anyone living with celiac disease in India as well as foreigners when they are on holiday in India.

What changes would you like to see in the Indian scenario regarding Celiac/ gluten intolerance and gluten free food?

Firstly, I hope that there is an increase in awareness and that the misconceptions regarding celiac disease are cleared up. I feel that sometimes people don’t take Celiac Disease seriously as they don’t understand the effects that it has on people who are suffering from it, so I hope this changes in the future. Secondly, I hope that more restaurants that are celiac-friendly start to appear.

Is the Indian govt /FSSAI sensitised about the gravity of the situation and problems being faced by gluten intolerant? What changes would you like to bring?

Over the past few years, FSSAI has stated that any product that has less than 20ppm mg per kg can be labelled as gluten free. However, there is no way to check that food item labelled as gluten free are actually gluten free. The reason it cannot be 100% trusted is that there is no specific penalty for these regulations not being followed. For eg. sometimes items I have come across at the grocery store say Gluten Free but when I read the other information on the label it says that it is processed in a factory handling wheat etc. therefore it is not 100% GF. Such things need to be taken into account when companies are producing their food labels. The government is not particularly involved in rules and regulations regarding Celiac Disease. I think a step forward would be the government actually recognising the severity of food allergies in general and spending funding on awareness campaigns.

You are nominated as an Ambassador for Beyond Celiac .. how do you feel and what is your role being an ambassador?

It is extremely exciting to be an ambassador for beyond celiac. I have been working with them to develop Gluten Free Starter kits for people who are newly diagnosed with celiac disease. The idea with these kits is that once someone is diagnosed the hospital can give them the kit to help them transition to a gluten free lifestyle easily. These Kits contain an information pack which I wrote using material provided by beyond celiac. It also has some Gluten free goodies that are from Wheafree.

Wheafree is associated with you and your project for a long time, can you tell us more about this special relationship?

It has been extremely enjoyable working with the Wheafree team over the past few years. Initially, when I learnt about Wheafree I was really happy to discover that there was provisioning for gluten free Indian Sweets. I am looking forward to visiting Wheafree’s 100% gluten free factory and blogging about it on gluten free Jio’s social media pages.

Annika Dhariwal (glutenfreejio.com)

Annika Dhariwal
CEO – Gluten Free Jio
I am an 18-year-old girl, called Annika Dhariwal, who was diagnosed with Celiac disease at the age of 9. As someone who attends Cheltenham Ladies College, a boarding school overseas in the U.K., and has traveled to over forty countries, I hope to encourage and inspire other children and adults on a gluten free diet to dream big. Having a serious restrictive diet is no reason to mope at home and hide from the world. Through my blog and website, Gluten Free Jio which I started in 2018 when I was 14 years old, my goal is to share some personal experiences of being a gluten free teen in a boarding school abroad, and tips in leading a gluten free lifestyle while at home in India. Gluten Free Jio is a platform, where you can seek help and find a community for yourself or your loved ones, get comprehensive knowledge about being gluten free in India and abroad, and find comfort in knowing that you are not alone.

LinkedIn        

Website: www.glutenfreejio.com

READ MORE
An Interview with Jeeva Anna GeorgeArticles

An Interview with Jeeva Anna George

image
An Interview with Jeeva Anna George

You are a multidimensional personality, you are an entrepreneur, bakery specialist, diet consultant, Writer/Author. According to you, which is the main role you play and why?

I am a curious person in the sense I like to understand how things work! So, definitely the baker in me who tries to create new recipes that  is definitely what is close to my heart. As a Celiac I understand the struggles of fellow Celiacs and  by using my knowledge and skills if I can create foods which others can enjoy its a win for me. This is also reason why during the pandemic I started to teach baking online.

You became all of the above for some reason, would you like to share your story with our readers as I am sure, it will be an inspirational story?

It’s been long journey for me!

My childhood goal in life was to be an IAS officer. Well, inspite of being a favourite to crack it, I didn’t and then the 4th & last time I wanted to write it is when I kept falling sick.

Fast forward to 2010, I was so unwell that I quit my job and finally discovered I had Celiac Disease. I had to take time out to heal and even when I joined work back, when I had to take some emergency medical leave I was asked to leave. In the meanwhile I was cooking and baking gluten free foods for myself. I took an  active interest to read everything I could  find on Celiac Disease,  whether it was medical journals or articles, or websites.  I connected to Celiacs all over the globe. I went to stores in Bangalore and requested them if they could source gluten free ingredients for me and also whenever they needed to know more I spoke to the manager or store owner.

In 2013, when decided I might as well do something that can help me & others. I started commercially baking on a small scale, kept talking about Celiac Disease whenever I got an opportunity,  my baking helped me get noticed.  It created sone kind of awareness which was not there before and then people started asking me to talk and write about it. My willingness to share information and knowledge also was a reason for why I was recognized by  Chefs and many in the food industry.

It has not at all been easy for me, I have spent countless hours, money, effort into all that you see me doing today. However, thanks to my family, a good support system and my faith its kept me going inspite of the numerous challenges.

At the end of day it is very important for me that whatever I do makes a difference and that is exactly why I wanted to be in the Civil Services anyway.

I would say this to summarize my answer everything I am doing today is due to a necessity or because someone requested me to help them out with something 🙂

When you came to know that you are Celiac, was your family and friends supportive? How was the reaction of society ? Were they sensitive to your needs

For family it was a relief because my symptoms finally had a reason. I am blessed to have a very supportive family..Friends were surprised there could be such problems.  Society, oh well! Some were  kind and empathized. Some were surprised that something like this was there and many also thought it was temporary and never took it seriously. I would say I haven’t had much trouble with family or friends but people even now,  especially strangers feel its a fad diet and I doing it for losing weight!  There is so much awareness from 12 years back but still so much more to happen.

You have met Higher up officials of FSSAI, what is your assessment about their understanding of this disease? Do you think Labeling laws are strict and good  enough for food business operators .

I don’t think they still understand the problems we Celiacs face, sadly. Yes, we have good labelling laws but there is no accountability and that very fact makes the labelling laws ineffective. I know numerous manufacturers who never knew that they had to even list allergens or give a disclaimer about shared facilities.

There are manufacturers who happily put a gluten free label without even understanding the meaning of glutenfree. So its very clear that the labelling laws have not been clearly communicated and that companies are not held accountable if they do not declare allergens or all ingredients.

What made you think of writing the book ‘A Gluten Free Life’ My Celiac Story  and how the experience as an author?

I was speaking about food & my struggles with Celiac Disease at a conference and in the audience happened to be a consulting editor who worked with Harper Collins. A month later she wrote to me and asked me if I wanted to write a book about my struggles and my journey.
That is how I came a write a book. It is really a miracle that a book deal was given to me. However,eventhough I submitted the manuscript in 2015, it was published only in 2018.

To write this book I took 1.5 years, I had to maintain a disciplined schedule and as my book has 25 recipes it meant a lot of time was spent creating those recipes as well. It wasn’t easy for me to go back in time & share many of my personal struggles but in order for developing the connect with the reader and serving the purpose of writing the book, I had to do things which weren’t emotionally a pleasant experience.

Writing a book is a lot of work and on a topic like health it is even more of a challenge as you don’t want the reader to be bored. In a world where only celebrities or movie stars are asked to write on health I still believe I am highly blessed to get this opportunity.

What advice/suggestions you will give to the Celiac community from the lessons you have learnt in your life ?

Well, one thing you have to realise is that

  1. Try to not to stress too much because at the end of the day it just effects us.
  2. Plan – Do not restrict your life because you have Celiac Disease. Instead, research and plan and live your life whether it is travel or anything else.
  3. Do not be hassled by people’s opinions who might think you are fussy or following a fad diet.At the end of the day no one can bear your pain. Physical pain cannot be borne by anyone else so you should do everything to make sure you are safe. Health is wealth,  as cliché as it sounds,  it is true.
  4. Be kind, clear and courteous when you are  trying  to communicate your dietary restrictions to chefs, managers or wait staff. Clear communication always gets through to others.
  5. Please also be kind when new Celiacs ask you for help or direct them to resources and people who can help.
    Be kind to each other as well and support fellow Celiacs if they are trying to do something for the community.

The only way the Celiac community benefits is, if we have empathy for each other. There is always  strength in numbers. For example just look at the vegan community just in a few years vegan products are flooding the market. I have seen how united they are. Their unity puts pressure on all big manufactures and it they cater to them.

One more question which came from my daughter. At what age you came to know about your celiac disease and what was your reaction to this ?

I was diagnosed at 27. Needless to say it was a little tough to grapple with it. However, since I didn’t know much about it then it wasn’t a huge shock for me. It was probably only after few months after my diagnosis the seriousness of it struck me.

Jeeva Anna George - User Story

Jeeva Anna George
Co-Author – A Gluten Free Life, My Celiac Story.
Gluten free & allergen free recipe developer and baker based out of Bangalore, India.

LinkedIn        

Website: www.glutenfreeliv.in

READ MORE
Dr. Sandeep S. Chhatwal - Your question have been answeredArticles

Your Questions Answered By Our Experts

image
Dr. Sandeep S. Chhatwal - Your question have been answered

Question: I am facing gluten intolerance from last 4 years and I am taking gluten free diet. But now I start having bloated stomach. What’s the reason for that?

Answer: Bloating of the stomach can have many reasons other than gluten intolerance. Lactose intolerance may be a common associated condition. You could get yourself tested for that. One may be sensitive to some legumes or vegetables. You could maintain a food diary and check what all foods cause intolerance.

Question: Difference among wheat allergy, gluten intolerance and celiac disease ?

Answer: Wheat allergy usually presents with skin and bronchial symptoms like asthma when one is exposed to wheat. This is mediated by an antibody called IgE. Patients respond to removing wheat from diet or environment and are treated with antiallergics just as other allergies. The allergy is usually limiting meaning it gets over in a short period of time.

Gluten intolerance is a condition in which the intestine reacts to challenge by gluten i.e exposure to food products containing gluten in the form of bloating, pain or diarrhea. If there is no exposure there are no symptoms. Gluten, however, does not damage the intestine. Gluten intolerant people don’t have the gene or the antibody which is present in celiacs.

Celiac disease is an autoimmune disease in which the intestine gets damaged because of exposure to gluten in genetically predisposed people and can lead to a lot of serious consequences caused because of inflammation and malabsorption. Being an autoimmune disease, it can be associated with other autoimmune diseases the most common being hypothyroidism.

 

Question: Hello sir I am gluten sensitive since 2020. I get sick of gas. What I do for that?”

Answer: That’s easy…avoid gluten.

 

Question: Can a person with celiac disease face issues with menstruation/menstrual cycle?

Answer: Coeliac disease can have an impact on the menstrual cycle in many ways. Firstly, a young girl who is coeliac may have a delay in onset of periods (menarche). Secondly, periods may be irregular with variable flow and patients may have a higher incidence of dysmenorrhoea (painful periods). Lastly, celiacs remain fertile for shorter duration as they may have early menopause.

 

Question: “My son (age 15 years) is having celiac (last 7 years) at starting stage while eating gluten by mistake his body reacts with severe headache or stomach ache but now reactions is stopped….so can I think celiac diseases is cured? Just to know the level of celiac which test has to be done? Every year we have to test celiac?”

Answer: Not having reactions does not mean celiac disease is cured. Once a celiac…. always a celiac. One should regularly test for antibodies ( ttG IgA ) to check for exposure to gluten. Keep in mind that a negative test does not mean exposure is not happening or that your child has started tolerating gluten. Celiac disease is an autoimmune disease and can affect the body in more than one way.

 

Question: My daughter is celiac and facing problem of constipation. She is taking medicine on daily basis for the last 4 years.

Answer: Constipation can be a symptom of coeliac disease. This happens when the gut in coeliacs absorbs more moisture than it should.
What you should also know is that gluten free diet has less fiber. Build your child’s diet around fresh fruits, vegetables, salads and nuts Include gluten-free whole grains like quinoa, buckwheat, amaranth, millet and brown rice. Ensure that your child is drinking enough liquids. Increasing fiber intake without increasing fluid intake can actually make the situation worse.
Exercise should be a regular part of the daily routine.
Hypothyroidism is a common disease which causes constipation and is seen in coeliacs. Get your child’s thyroid profile done.
If your child continues to experience constipation then one needs to rule out other conditions that can occur along side celiac disease and trigger constipation. For this you need to talk to your treating doctor.

 

Question: Why doesn’t the gluten come zero on testing when there is no gluten like in Kissan ketchup and Bikano. To be more precise, Do the products of Wheafree or homemade completely gluten free products which are completely devoid of gluten also show such readings on testing like 2, 3, 1.5….ppm its confusing.

Answer: For testing one should use the accurate weight of the test sample as mentioned on the kit. Using a higher or lower quantity may give a false positive or negative result. It also depends on the method one uses for testing whether it is Lateral flow devices( LFD’s) vs ELISA which are beyond scope of this discussion.
As a thumb rule remember that if the test done accurately shows gluten <20 ppm, the product is safe for consumption.

 

Question: Hello sir I have been celiac since 2011 and it’s been 11 years and I have been taking gluten free diet. Recently, I have undergone ultrasound which shows that my gallbladder wall is thickening around 10.3 mm and a little bit of fatty liver. Please suggest what I can do to get this resolved.

Answer: Liver enzymes may increase in coeliac disease. There may be other diseases associated with coeliac disease. To start with get an LFT, GGT and ttGIgA tested. Get a Fibroscan liver done if it is available in your city. This would help get a more clear picture.
Follow up gall bladder thickening with a serial ultrasound every 6 months.

 

Question: My son 18 diagnosed celiac 10 yrs back. His ttg remains around 15-16.He is too skinny with lean bones .
How to increase his muscle mass and make bones stronger .(we are vegetarians)We strictly follow GF diet.

Answer: What is the cut off level of ttG for your lab? If ttG is higher than upper limit of normal think on lines of contamination or hidden gluten in his diet. Get him screened for iron and vitamin deficiencies. Get his sugar and thyroid profile tested . You should also see your doctor to rule out any other illness which may be associated with coeliac disease.
If all above is okay, see a qualified dietician to plan his diet.

 

Question: Hello sir I am gluten sensitive since 2020 . I get sick of gas. What I do for that.

Answer: That’s easy…avoid gluten

image

We have got experts to help you with your doubts and queries related to celiac/gluten intolerance. It’s time to have your questions answered!

Our Expert:

Dr. Sandeep S. Chhatwal

Dr Sandeep S Chhatwal
Senior Consultant Internal Medicine
Omni Clinics and Diagnostics
SCO 343-345 / 34 A
Chandigarh

Dr Sandeep S Chhatwal is a Senior Consultant Internal Medicine and Managing Director of Omni Clinics and Diagnostics. With over 25 years of experience, he has special interest in Allergies, Diabetes, Geriatrics and Adolescent health disorders. He is a member of various Medical forums and is actively engaged in community workshops, training and awareness programmes. Dr Chhatwal is the founder and Managing Trustee of NGO Veeranwali foundation. The NGO touches more than 3000 underprivileged children a month in fields of education and healthcare through its flagship project Nanhi Jaan.

Dr Chhatwal is also a Coeliac and that helps him relate better with his coeliacs under his care.

image
Your Questions Answered by Dr. Mohinish Chabbra

Question: My son(17yrs) being on gluten free diet since past 8 yrs… TTG levels controlled, hemoglobin levels maintained…still he’s too lean and skinny what can be done? (Vegetarian)

Answer: Lean and skinny may be normal till he is asymptomatic with good energy levels, good appetite with controlled ttg/normal Hb. Usually at this age basal metabolic rate is high weight gain may not occur. It’s important to calculate his calories intake and type of ingredients in his diet.

 

Question: Sir, I was diagnosed with celiac about three years ago, due to symptoms of diarrhea and since then I am on gluten-free diet and my TTG level comes below 22 from 159, but still today I am facing morning diarrhea one or two times, and my weight also does not increase, but blood level is increased, why?

Answer: One needs to check stool consistency also along with frequency. If stools are normal but more frequent you need to still check for inadvertent exposure to gluten, check for TTG levels. If a strict gluten free diet is being followed and TTG is falling or normal, an increase frequency of stool could be due to many other associated conditions like – IBS, microscopic colitis, pancreatic exocrine deficiency, secondary bacterial overgrowth

 

Question: How can we get ingredients list of medicine and supplements (vitamins etc) to know if they are gluten and soy and corn free?

Answer: According to the FDA, “The vast majority of oral drug products either contain no gluten or virtually no gluten. In the very rare cases where gluten may be present, we estimate based on drug formulation information that wheat starch and other ingredients derived from wheat would contribute no more than 0.5 mg gluten to a unit dose of an oral drug product. This amount is less than may be found in a single 30-gram serving of food labeled gluten-free according to FDA’s regulations.”

Gluten can be used in many medications as an excipient, so it is important for you to check that each medication you take is gluten-free. If you have Celiac disease and are filling a prescription, ask the pharmacist to verify the ingredients to ensure that it is gluten-free. You can ask their help in reading and understanding the list of ingredients or contact the manufacturer.

Some Excipients to look for:
Dextrins – Result from the hydrolysis of starch by heat or hydrochloric acid (from corn). It can also be obtained from wheat, rice or tapioca.
Dextrates (when source is not specified)
Dextri-maltose (when barley malt is used)
Maltodextrin – A startch hydolysate that is usually obtained from corn but can be extracted from wheat, potato or rice
Modified Starch (when source is not specified)
Pregelantinized Starch – a starch that has been chemically or mechanically processed. The starch can come from corn, wheat, potato or tapioca
Sodium Starch Glycolate – a starch that is usually obtained from potato but many come from any starch source

Answers can be found on the package insert and the key word to look for is starch. If the starch is listed as “cornstarch” or starch (corn) it can be assumed to be gluten-free. However, if starch is listed by itself the only way to confirm the source is to call the manufacturer

Question: Does Multifold TTG result in the range of 160 is enough for diagnosis of Celiac Disease as it reduces to 30 on Gluten Free Diet after 18 months?

Answer : Not enough for diagnosis. Gold standard of diagnosis is duodenal biopsy showing changes of villous atrophy. In children if TTG is more than 10 times the upper limit then you may avoid biopsy by performing other tests like antiendomysial antibodies plus HLA DQ 2/8

 

Question: I was diagnosed with celiac about three years ago, due to symptoms of diarrhoea and since then I am on gluten free diet and my TTG level comes down to 22 from 159, but still today I am facing morning diarrhoea one or two times, and my weight is not increasing, but blood level has increased, Why?

Answer: There are many other causes of diarrhoea persisting despite being on gluten free diet:

  1. Inadvertent intake of gluten which you are not aware
  2. Micros scopic colitis
  3. Secondary bacterial overgrowth
  4. Pancreatic exocrine dysfunction

 

Question: My daughter aged 17 years has been diagnosed with celiac disease in July 2021. Is there any medicine which can be given to her if she is accidentally glutened?

Answer: There is no specific treatment but only symptomatic treatment can be given.

 

Question: How many chances of celiac in new born baby if you are celiac?

Answer: First-degree relatives (parent, sibling, child) of someone with celiac disease have a 1 in 10 chance of developing celiac disease.

 

Question: If on testing any food product, gluten is 1.5 ppm as in Kissan ketchup testing, is it still preferable to avoid it as it is not 0 ppm( although less than 20 ppm) or can be taken without giving it any thought.?

 
Answer: Any product with gluten less than 20 ppm can  be taken with no problem at all

image

Our Expert:

Dr Mohinish Chhabra

Dr Mohinish Chhabra
Director, Department of Gastroenterology and Hepatology at Fortis Hospital, Mohali

image
READ MORE
Zero-Gluten GroupArticles

In conversation with the Admin of ‘Zero-Gluten’ Group on Facebook – Mr. Abhinav Arora

image
Zero-Gluten Group

Mr. Abhinav Arora – Admin of “Zero-Gluten” group on Facebook, which is very popular among the gluten-free community, shared insights with Mr. HPS Lamba (CEO, Wheafree) into the making and managing of this group.

Q 1: How this idea of making Zero Gluten on Facebook came up and what were your thoughts behind this?

A: ‘Zero Gluten’ was made with a sole intention of helping others.
I was detected Celiac in 2003, when the know-how about the Ailment was literally Zero. General Public, even the doctor fraternity at that time had very little or no knowledge about the word Gluten. I fondly remember asking one of my friend, who just completed his MBBS at that time, he told that the word Celiac was defined in one of the paragraph in his theory book, stating that it’s an allergy to wheat!! I was aghast by hearing that!! If a medical practitioner has only this much knowledge about the subject, spare the horror for the general public!
So we (Me and my Co-Founder Celiac Brother Udit daa) came up with the noble idea of helping people with whatever means and resources we had, basically imparting knowledge through our hard fought bitter- sweet experiences.
We wanted what we have suffered, others shouldn’t!

Q2 What services Zero Gluten is offering to its members ?

A: It’s an open platform to all those who are suffering from this ailment. We are keen to provide any kind of assistance needed, you drop us message in the group, and see the willingness of the people to help you out with the experiences they have had.

We have with us on board, Manufacturers, Dedicated mother’s, Housewives, Bakers, Master Chef’s, Medical Practitioners, Esteemed Panel of Doctors, Nutritionist, Medical & Legal Advisors, FMCG Managers, Food Analyst, and a lot more intellectuals, who are more than happy to render their services, as and when required.
So, basically, we bring a lot to the table! It’s just a small effort to bring everything under one roof!

These services are Absolute Free of Charge for everyone!! Since Kindness costs nothing!

Q3 Though it’s a virtual group but do you plan to meet offline in the future? Have you met your members in person and if yes, then how was the experience?

A: I’m a firm believer of a fact, when it connects, it connects. It might be a virtual world, and we do have geographical disadvantages, but distances have never mattered, whenever we talk, we rock! My wife has named all my contacts as GF Name, so she says, your Girlfriend’s are calling, go Now!!

I have been blessed with people across the globe and God has been kind.

Yes, I have met around 300 members personally, and almost all the members know me by my first name. It’s always been an interactive session meeting with my fellow beings, since we all sail in the same boat, so it’s a bond of a different level.

Q5 Even in small group, controversies crop up but in more than 2500 members of Zero Gluten, very rarely any such controversy has seen .. any secret formula 🤔😊

A: That’s too humble of you, to ask me this question!! Controversies arise when people have some or the other hidden agendas or selfish motives behind any of their acts. But here we all work towards the betterment of society at large and try to help those in distress.

Yes, I do agree, people do come up with your nasty designs of gaining moolah from the platform, for which I have been very much vocal about our intolerance towards Advertisements of any kind, on the group’s platform. Or misuse for any branding and labeling or luring customers, I have always tried to maintain the sanity and decorum of the group before anything else.

And as they say “Is group में, एक ही गुंडा हो सकता है, और वो गुंडा मैं हूं। ”

Q6 What is your take on role of government in helping Celiac community?

A: Government has been pretty lethargic in their reasoning, like when we have approached the Govt. (Manier times regarding various projects), they have always been a spoilsport, or of no help at all. I have heard the concerned authorities saying, that this is a *Western Country Problem*, *Child with special Needs problem*, *Rich Kid Problem* and have always been made fun instead of helping our cause. As a matter of fact, in India, according to the census 2009, patients with AIDS (acquired immunodeficiency syndrome) were closely 2.8 million and whereas patients suffering from Celiac Disease, were close to 8 million. And still, there is Zero Awareness by the Government.

Q7 Like overseas, there are torch bearers taking cause of the celiac community to govt and public at large but we don’t see much of action happening in India … your take

A: In India, Torchbearers are those who either have dealt with a problem, are dealing with it, or have seen someone close fighting for it. We lack the Zeal and effort from everyone, just a handful of people, I might be wrong in saying that “A small spark can ignite the fire” but here in India people have extinguishers within their mindsets, so until and unless it happens in their own homes, no one is bothered about it!!

And this is a very sad, but brutal reality of life in our motherland!

Q8. You are a celiac yourself for last …….. years. What message you will like to send across to our readers and the Indian celiac community?

A: I age 36, and I’m a ‘detected’ Celiac for the past 20 years and undetected one for the last 30-32 years.

I have in these 20 years have seen kids/adults with 20000 ttg levels, and coming down to as low as .001 ttg levels.

It’s all within you!!

Firstly, Celiac Disease isn’t categorically a Disease, it’s just a ‘Way of Living’ just some alterations with your food habits, and you are through with it. As for the cure for Celiac Disease, the cure & treatment lies in your very own hands, that is ‘Following the Gluten-Free diet Religiously”.

You follow the Gluten Free Regime & I’m sure most of your troubles would vanish!

I adhere to one thing very strictly, “If in Doubt, Leave it Out”

P.S: Please read all the I’s as WE
It’s a continuous and combined effort of all to make things work, I just act as a medium.

Regards:

Mr. Abhinav Arora (Admin: Zero Gluten Group - Facebook)

Abhinav Arora
Facebook Join Facebook Group – Zero Gluten

READ MORE
You are more likely to get migraines if you have celiac disease, especially if you are a womanArticles

You are more likely to get Migraines if you have Celiac Disease, especially if you are a Woman

image
You are more likely to get migraines if you have celiac disease, especially if you are a woman

Headaches are more common overall in celiac disease, new study finds up to ten days a month, Claire Baker lives with migraines, so she can see herself in results of a new study that found migraines are common in women who have celiac disease.

“Migraine days really hamper my ability to enjoy life. Unmedicated, I can lose whole weekends to them,” noted Baker. “Fortunately I’ve found a medication that addresses the worst of the pain so I can keep working, but even with the pain managed, they pretty much wipe me out.” Baker, senior communications director at Beyond Celiac, was diagnosed with celiac disease in 2010.

Overall, people with celiac disease get more headaches, including migraines, than people who don’t have celiac disease, according to a new study published in the journal PLOS One that adds to international evidence of neurological symptoms in celiac disease.

In addition, gastrointestinal symptoms are more common in celiac disease patients who have migraines than celiac disease patients who do not, the study by researchers at the Tehran University of Medical Sciences found. In the study of 1,000 adults with celiac disease registered at Shariati Hospital in Tehran who were matched with people who don’t have celiac disease, the prevalence of migraines was nearly double in those with celiac disease, 21 percent compared to 12 percent. Headache was also more prevalent in study participants with celiac disease, 34 percent compared to 27 percent.

Women’s chance four times greater than men’s
Women with celiac disease were about four times more likely to have migraines than men with celiac disease, 80 percent compared to 19 percent. Migraines were frequently pulsating, usually affected one side of the head and were accompanied by nausea and/or vomiting. However, they often did not have an aura, which is a sensory disturbance that can include flashes of light, blind spots, and other vision changes or tingling in the hand or face, which is associated with migraines.

The study also found that type 1 diabetes was less common in those with celiac disease who reported migraines compared to those who reported headaches that were not migraines.

Study participants with celiac disease reported their symptoms at the time of diagnosis. Those who said they had a history of headaches were evaluated with international criteria for headache diagnosis and classification. The gastrointestinal symptoms of those with migraines and headaches were then assessed.

Previous studies in the United States and Italy have also found an increased prevalence of migraine in those with celiac disease, although the percentages vary, the study authors wrote, noting that their sample size was large than the other studies.

Migraines and GI symptoms
Migraines themselves can have gastrointestinal symptoms, specifically nausea and vomiting, and the study notes that celiac disease should be ruled out before these symptoms are attributed to migraine alone. “The evaluation of celiac disease in patients with migraine and these simultaneous gastrointestinal symptoms seems reasonable,” the study says.

Researchers pointed to 2020 study by researchers at Sheffield University in the United Kingdom that found some changes in celiac disease patients’ MRIs before and after exposure to gluten. “Performing a brain imaging study in celiac disease patients with migraine before and after the start of a gluten-free diet can be useful in better understanding the physiopathology of migraine in the patients,” the authors wrote.

Beyond Celiac has awarded a two-year established investigator grant to the Sheffield researchers to expand investigation of the neurological and neuropsychological manifestations of celiac disease and gluten-related disorders. This research will be a continuation of earlier work from Nigel Hoggard, MD, and Iain Croall, PhD.

The new research will examine the relationship between findings from brain scans of patients with gluten-related disorders and a variety of different parameters. The study will focus on how effectively the gluten-free diet treats these neurological problems and will further investigate long-term effects on cognitive function, severity of depression and anxiety symptoms and overall quality of life.

Up to 500 patients who have had brain scans are expected to participate, the largest studied so far. The new results will help to corroborate evidence and further clinical understanding of the neuropathology of celiac disease and gluten-related disorders.

Limitations of the migraine study include lack of measurement of antibodies against antigens found in the central nervous system and the larger number of study participants who were women.

READ MORE